MuM-PreDiCT goes to Egypt!

By Ngawai Moss

MuM-PreDiCT research has always had patient and public involvement at its core to ensure the research is meaningful for women with two or more long term health conditions. I initially got involved during the early stages of development, now two years later we are 10 months into the funded programme!

We have a wonderful group of women who have helped shape and steer the research as it evolves. Their contributions are integrated in all sorts of ways, from changing the research design to include the perspective of Dads (who often play a massive role in supporting and caring for women), to changing the wording and design of public facing materials (like posters or our recent core research outcomes survey). Women from our patient and public involvement group have also helped raise the profile of the research and the types of issues they face in their pregnancy journeys speaking at events and writing blogs.

I was invited to Egypt to speak about ‘Patient, Public and Community Involvement in Women’s Health Research’ by Dr Mohamed Fawzy who was organising the Upper Egypt Assisted Reproduction Conference. He was looking to showcase best practice in women’s health research, and it seemed a perfect opportunity to highlight our approach to involvement as part of the MuM-PreDiCT research.

I spoke about patient and public involvement in women’s health research and provided context by featuring real life examples of impact from MuM-PreDiCT. I explained that women with two or more long term health conditions are subject matter experts in living with their health conditions, they appreciate or rely on their support networks. Patient insight like this is valuable and should be an important element of research to improve its relevance and quality. Ultimately study findings should be meaningful for those who will benefit from research learning and the improvements in care they may generate.

I also highlighted that ‘involvement’ is different from ‘participation’ (where research is conducted on or about patients). Women from the MuM-PreDiCT patient and public involvement group contribute to the research process, as do Rachel Plachcinski and I who are both co-investigators. I outlined some principles to help researchers who wanted to start involving patients in their research journey. For example: building relationships, involving people as early as possible, communicating openly, showing reciprocity, and costing involvement work into research. Different research environments and methods may require different approaches but the principles are broadly similar.

Traveling to Egypt was an amazing experience, meeting new people, sharing meals and seeing some of Egypt’s historic sights. There was an impressive range of speakers at the conference from all over the world… but luckily they upgraded me to ‘Prof’ Ngawai Moss on all the promotional materials so I stated off on a high!!

Ngawai sharing her views and experiences at the conferences and later exploring the Egyptian Pyramids.
Tags: No tags

Add a Comment

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.