79 health conditions: defining 2 or more long-term health conditions in pregnancy

Cancers

  1. All cancers
    • Solid cancers
    • Haematological cancers
    • Metastatic cancers
    • Exclude basal cell carcinoma

Cardiovascular disease

  1. Hypertension
  2. Ischemic heart disease & Myocardial infarction
    • Myocardial infarction (thrombosis)
    • Myocardial infarction (dissection)
  3. Heart failure
  4. Stroke
    • Transient ischemic attack
    • Ischemic stroke
    • Haemorrhagic stroke
    • Unspecified stroke
  5. Atrial fibrillation
  6. Congenital heart disease
  7. Valvular heart disease (mitral, aortic, mixed)
    • Congenital
    • Acquired (e.g Rheumatic valvular disease)
  8.  Cardiomyopathy
    • Congenital
    • Acquired

Dermatology

  1. Eczema
  2. Psoriasis
  3. Autoimmune skin disease
    • Vitiligo
    • Alopecia areata
  4. Other dermatological conditions
    • Seborrheic dermatitis
    • Rosacea
    • Hidradenitis suppurativa
    • Lichen planus

Ear, Nose, Throat

  1. Profound deafness
  2. Allergic rhinitis & allergic conjunctivitis

Eye

  1. Inflammatory eye disease
    • Scleritis & episcleritis
    • Anterior uveitis
    • Posterior uveitis
  2. Cataract
  3. Diabetic eye disease
  4. Severe blindness
  5. Retinal detachment

Gastroenterology

  1. Irritable bowel syndrome
  2. Inflammatory bowel disease
    • Ulcerative colitis
    • Crohn’s disease
  3. Coeliac disease 
  4. Chronic liver disease
    • Chronic hepatitis B & C
    • Alcoholic liver disease
    • Autoimmune liver disease
    • Cirrhosis
    • Non-alcoholic fatty liver disease
  5. Peptic ulcer
  6. Gall stones (cholelithiasis)

Gynaecology

  1. Polycystic ovarian syndrome
  2. Endometriosis
  3. Leiomyoma (fibroids)
  4. Infertility

Haematology

  1. History of venous thromboembolism (VTE)
    • Deep vein thrombosis
    • Pulmonary embolism
    • Other VTE
  2. Primary thrombocytopenia
  3. Haemophilia 
  4. Sickle cell anaemia
  5. Pernicious anaemia

Mental health

  1. Depression
  2. Anxiety
    • Anxiety
    • Panic disorder
    • Phobia disorder
    • Post traumatic stress disorder
  3. Serious mental illness 
  • bipolar affective disorder
  • schizophrenia
  • psychosis
  1. Eating disorder
  2. History of alcohol use disorder (misuse / dependence)
  3. History of substance misuse 
  4. Neurodevelopmental disorder
    • Learning disability
    • Attention deficit hyperactivity disorder
    • Autistic spectrum disorder
  5. Others
    • Obsessive compulsive disorder (OCD)
    • Self-harm
    • Personality disorder
    • Dissociative disorder 

Rheumatology

  1. Systemic lupus erythematosus
  2. Spondyloarthritis
    • Psoriatic arthritis
    • Ankylosing spondylitis
  3. Inflammatory arthritis
    • Rheumatoid arthritis
    • Sjogern’s syndrome
    • Raynaud’s syndrome
    • Systemic sclerosis
    • Primary systemic vasculitis
  4. Ehler’s Danlos Syndrome (EDS) Type 3 (Hypermobile EDS)

Orthopaedic

  1. Scoliosis
  2. Vertebral disorder
    • Intervertebral disc disorder
    • Spondylosis
    • Spondylolisthesis
    • Collapsed vertebrae
    • Spinal stenosis
  3. Chronic back pain
  4. Osteoporosis 
  5. Osteoarthritis

Neurology

  1. Migraine
  2. Other chronic headache (including cluster headache, tension headache, other chronic headache)
  3. Epilepsy
  4. Multiple sclerosis
  5. Spina bifida
  6. Idiopathic intracranial hypertension
  7. Peripheral neuropathy
  8. Somatoform disorder 
    • chronic fatigue syndrome / myalgic encephalomyelitis
    • fibromyalgia
    • chronic pain syndrome (includes chronic regional pain syndrome, myofascial pain syndrome)

Respiratory

  1. Asthma
  2. Chronic obstructive pulmonary disease
  3. Obstructive sleep apnoea
  4. Pulmonary fibrosis, interstitial lung disease
  5. Pulmonary hypertension
  6. Bronchiectasis
  7. Cystic fibrosis
  8. Sarcoidosis

Renal

  1. Chronic kidney disease 
  2. Urinary tract stones

Endocrine

  1. Diabetes mellitus
  2. Thyroid disorder
  3. Pituitary disorder
  4. Adrenal benign tumour
  5. Hyperparathyroidism

Other

  1. Human immunodeficiency viral (HIV) infection / AIDS
  2. Turner’s syndrome
  3. Marfan’s syndrome
  4. Solid organ transplant 

Video recordings from the 18th Feb 2021 dissemination webinar

We would like to thank our PPI representatives Mary and Jennifer, PPI co-applicants Rachel and Ngawai, our event support person Edward and all the collaborators for making this webinar successful. Special thanks to Edward Bywater for preparing these video clips.

Webinar 18th Feb 2021

Event: Webinar on research to improve care for pregnant women with 2 or more long-term physical or mental health conditions

Date: Thursday, 18th February 2021

Time: 0930am – 1130am (UK time)

Link to register: https://www.eventbrite.co.uk/e/shaping-research-for-pregnant-women-with-2-or-more-long-term-conditions-tickets-138491709431

*The webinar will be recorded and presentations will be made available on our website after the event.

Agenda:

– Introduction: why is this research needed

– Our latest findings

– Next step

– Live Q&A

Who is this event for?

– women with 2 or more long-term physical or mental health conditions and their partners

– maternity activists and educators

– health care professionals

– researchers, research funders

– policy makers

– commissioners

– public health

About us

The MuM-PreDiCT consortium is developing research to study and improve maternity care for pregnant women who are managing two or more long-term health conditions.

The consortium is funded by the Medical Research Council (UK) consolidator grant and supported by Health Data Research UK.

It is a collaboration with seven academic institutions and NHS partners across all four countries in the UK.

Our team includes experts in Data Science, Obstetrics, Psychological Medicine, Primary Care and Public Health alongside women with experience of having two or more health conditions that presented before pregnancy.